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7

News, Notes and Events

Visit this page often to stay apprised of current news and events. Use our submission form to suggest news or events for inclusion on the Multiple Systems Navigator.

1

Event

Preventing Parent Burnout

for Parents of Children with Special Needs

Please join Maryalice Fegeley, Regional Coordinator for Parent to Parent of NYS, as she presents the webinar Preventing Parent Burnout for Parents of Children with Special Needs on Tuesday, Jun. 19 from 6 to 7 p.m. Extraordinary parenting responsibilities create extraordinary pressures on parents. At the same time, parenting a child with special needs requires energy, focus, and enthusiasm to be effective in our role. The better off we are emotionally and physically, the better off our families will be. Join us for this webinar on Preventing Parent Burnout and discover positive ways to cope with and effectively manage stress.

Contact Shannon McCracken at  716-675-0239 with any questions.

Please be advised that only the first 100 participants who log on will be able to attend.

Location: Webinar
Date: June 19, 2018
Time: 6:00 PM - 7:00 PM

2

Event

Loss, Grief, and Adjustment for Parents of Children with Special Needs

Please join Maryalice Fegeley, Regional Coordinator for Parent to Parent of NYS, as she presents the webinar Loss, Grief, and Adjustment for Parents of Children with Special Needs on Wednesday, Jun. 20 from 12 to 1 p.m. Powerful and intense feelings are natural and common responses to parenting a child with exceptional needs. This training will provide an overview of common emotions experienced by parents and discuss how by sharing and acknowledging these emotions parents can find the inner strength needed to face and embrace their role as a parent of a child with special needs.

Please contact Shannon McCracken at 716-675-0239 with any questions.

Please be advised that only the first 100 participants who log on will be able to attend.

Location: Webinar
Date: June 20, 2018
Time: 12:00 PM - 1:00 PM

3

Event

Understanding Support & Services Administered by OPWDD

A Guide to Families

Please join Mary Beth Fadelici, Regional Coordinator of Parent to Parent of NYS, as she presents the webinar A Guide for Families to Understanding Supports & Services Administered by OPWDD on Thursday, July 12 from 5 to 6 p.m. The purpose of this training is to introduce families to the language of service delivery systems and to define and clarify information about services and supports. Participants will gain an increased awareness and understanding of eligibility criteria and the eligibility determination process. The training includes an overview of Medicaid Service Coordination (MSC), Home and Community Based Services Waiver, and Family Support Services.

Please contact Tina Beauparlant at 518-381-4350 with any questions.

Please be advised that only the first 100 participants who log on will be able to attend.

Location: Webinar
Date: July 12, 2018
Time: 5:00 PM - 6:00 PM

4

Event

Starting Over - Grandparents Raising Grandchildren with Special Needs

Please join Dianne O’Connor, Regional Coordinator for Parent to Parent of NYS, for this webinar geared to Grandparents Raising Grandchildren with Special Needs on Monday, May 14 from 6 to 7 p.m. There are many reasons why a grandparent, or relative, raising their grandchildren full time. By creating an enriched, supportive, and safe living environment, grandchildren stay connected to their family while keeping them out of foster care.

Please be advised that only the first 100 participants who log on will be able to attend. 

Location: Webinar
Date: August 14, 2018
Time: 11:00 AM - 12:30 PM

5

News

New York Institute for Self-Advocacy (NYISA)

Families Together in New York State and YOUTH POWER! are proud to announce the application for the next New York Institute for Self-Advocacy (NYISA) is now open and accepting submissions! The NYISA is YP!'s initiative for young adults (21+) to learn self-advocacy skills such as civics, public speaking, budgeting, and much more! NYISA Graduates go on to the Emerging Leaders Network, where they take what they learned and teach other self-advocates across New York State. This 4-day, 3-night event is free to attend!

A Microsoft Word version of the application is available upon request; if you need that, or if you have any other questions, please contact Zack Kilmer, NYISA Coordinator, at 518-708-3808 or zkilmer@youthpowerny.org.

If you qualify, or know someone who does, we strongly encourages you to apply and/or spread the word! The deadline for this year's application is July 1st, 2018

6

News

Social Security Administration Releases Updated Guidance on ABLE

On March 8, 2018 the Social Security Administration (SSA) published an updated version of its Program Operations Manual System (POMS) regarding the ABLE Act and ABLE accounts. POMS is based upon the law and is an operational policy reference used by SSA internal staff to conduct SSA business. Highlights include:

  • Partnerships that States can use to administer ABLE accounts.
  • Treatment of duplicate ABLE accounts.
  • Clarification of excluded contributions.
  • Simplification of Qualified Disability Expense (QDE) examples to make them more general at the request of the IRS.
  • Data Exchange.
  • Usage of debit cards.

*Final IRS regulations have not been published therefore the IRS position could change when the regulations are finalized. If this happens, SSA ABLE policy will be updated accordingly.

The ABLE National Resource Center plans to post a more detailed summary of the POMS in the near future.

7

Note

Share Your Insights on the Long Term Care System

Take the Survey Now!

Dr. Howard Zucker, New York State Commissioner of Health and Greg Olsen, Acting Director of the New York State Office for the Aging, request your participation in a survey on barriers and gaps for New York’s long term care system. This information is the first step in creating a NYS strategy to help meet the needs of our ageing population now, and in the future. 

Take the survey now!

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Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council