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Self-Directed Care

Self-directed care services, often referred to as consumer-directed services, is a philosophy and practice that assumes that caregivers have the right and ability to assess their own needs, determine how and by whom those needs are met, and evaluate the quality of the services they receive.

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Self-Directed Care

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1

ABLE Accounts: 10 Things You Should Know

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. The beneficiary of the account is the account owner, and income earned by the accounts will not be taxed. Contributions to the account made by any person (the account beneficiary, family and friends) will be made using post-taxed dollars and will not be tax deductible, although some states may allow for state income tax deductions for contribution made to an ABLE account.

2

Caregiver Respite Voucher Program

The Respite Voucher Program is a caregiver-directed program. Caregiver-directed means that the caregiver chooses their own care providers instead of a state agency dictating what care is required, by whom and when that care is delivered. In such models, the client/caregiver is given the right to full autonomy in all decision-making related to that care. In this case, choosing a care provider for a care receiver for the sole purpose of providing a break for the primary caregiver.

Responsibilities of the caregivers include; hiring, firing, training decisions, pay rate. NYSCRC suggests pay rates be in the range of $15 - $25 per hour for respite providers.

Eligible caregivers can receive up to $600 of reimbursable funds to pay for care for the care receiver so that caregiver can get respite, a break from caregiving.

3

Everything You Need to Know About OPWDD Eligibility

This series of videos gives an introduction to the OPWDD eligibility process, and process for obtaining services. 

  • What is OPWDD, where to start and what is eligibility? Basic introduction to accessing services for people with intellectual and developmental disabilities in New York. Introduces Office for People with Developmental Disabilities (OPWDD) and the concept of eligibility for OPWDD funded services.
  • What is needed to apply for OPWDD eligibility? Discusses evaluations required for applying for eligibility and steps required for submitting paperwork to the Office for People with Developmental Disabilities (OPWDD).

  • Eligibility attained, what now? Once a person has established eligibility, what are the next steps? How do you access services? What services are there?

4

NYS System of Care Framework

The Systems of Care (SOC) Framework is a coordinated network of services and supports that are organized to meet the physical, mental, social, emotional, education, and developmental needs of children and their families.

Building Systems of Care, by its own designation as “systems” and not “system,” requires cross-system partnerships with the common goal of developing a broad array and continuum of services and supports that are infused with the values of:

  • Family Driven & Youth Guided
  • Community-Based
  • Cultural & Linguistic Competence

Systems of Care refer to the collaborative, coordinated infrastructure within a community to meet the needs of children and families so they can achieve their own definition of success and equitable outcomes.

Systems of Care are implemented at both the systems level (policy, financing, management) and the service/support delivery level.

5

Preparing Your Child/Young Adult for Work

This fact sheet defines disability disclosure and discusses the advantages and disadvantages for young adults disclosing their disability to their employer.

6

Reba McEntire PSA on Accessing OPWDD Services

Reba McEntire delivers a PSA encouraging people to access services from the NYS Office for Persons with Developmental Disabilities (OPWDD) to support individuals with developmental disabilities to live the richest life possible.

Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council