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Self-Directed Care

Self-directed care services, often referred to as consumer-directed services, is a philosophy and practice that assumes that caregivers have the right and ability to assess their own needs, determine how and by whom those needs are met, and evaluate the quality of the services they receive.

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Self-Directed Care

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1

2-1-1/3-1-1

2-1-1 (and 3-1-1 in New York City) are easy-to-remember numbers that helps people cut through what can be a confusing and overwhelming maze of information and resources.

2-1-1 (and 3-1-1 in New York City) helps people assess their needs and links them directly to the resources that will help. Whether you are looking for essential services, seeking volunteer opportunities or starting a small business, 2-1-1 (and 3-1-1 in New York City) is there to help.

2

411 on Disability Disclosure: A Workbook for Youth with Disabilities

This Workbook is designed for youth and adults working with them to learn about disability disclosure. This workbook helps young people make informed decisions about whether or not to disclose their disability and understand how that decision may impact their education, employment, and social lives. Based on the premise that disclosure is a very personal decision, the Workbook helps young people think about and practice disclosing their disability. The workbook does not tell a young person what to do. Rather, it helps them make informed decisions about disclosing their disability, decisions that will affect their educational, employment, and social lives.

 

3

Accessing Home and Community-Based Services: A Guide for Self-Advocates

Accessing Home and Community-Based Services: A Guide for Self Advocates is a tool designed to help people with disabilities, families, and friends find and use available resources. This may include family and friends, community-based services, state funded waivers and programs, and other resources to help empower people with disabilities to live as independently as possible and make our own choices about what we need. It is a tool to inform about various resources and how to access them. It is also a reference about resources that, although you may not need or want them now, you can use in the future.

4

Become a Youth Peer Advocate (YPA)

Are you a young person who is between the ages of 18 and 30 years old with first-hand experience with mental health, special education, or foster care services? Are you curious about ways you could help a younger person who is facing some of the same challenges you faced?

If so, consider becoming a Youth Peer Advocate (YPA). Learn more about how you can use your own experience with recovery to make a positive impact in another young person’s life.

5

Benefit Development Resource Guide

The Benefit Development Resource Guide (Resource Guide) is designed to assist employees who are responsible for developing the benefits and entitlements necessary to fund services for individuals served by OPWDD and voluntary provider agencies. It is not intended to be read from cover to cover, though those new to the topics discussed may wish to do so. The Resource Guide is primarily intended to be used as a reference during the process of assisting individuals in developing the benefits necessary to fund their care.

This guide provides detailed information about conducting eligibility investigations, protecting assets, and applying for Medicaid, the OPWDD Home and Community Based Services (HCBS) Waiver, Supplemental Security Income (SSI), Social Security benefits (SSDI), Medicare, and the Supplemental Nutrition Assistance Program (SNAP – formerly called Food Stamps). The manual consists of this introduction and the following sections:

  • Benefit Development
  • Liability for Services
  • Medicaid
  • Home and Community Based Services Waiver
  • Supplemental Security Income
  • Social Security Benefits 
  • Work Incentives 
  • Medicare
  • Supplemental Nutrition Assistance Program
  • Resource Management
  • Additional Resources

6

College: You Can Do It! Tip Sheet

This tip sheet provides helpful information to help students with disabilities prepare for college.

The document covers three phases: 

  • Preparing for college while in high school.
  • Staying in college, which requires numerous self-management skills.
  • Preparing to move beyond college and into a career.

7

Community, Work and Independence, Inc.

Community, Work & Independence, Inc (CWI), headquartered in Glens Falls, NY, offers a diverse array of services for individuals with disabilities in Warren, Washington, Saratoga and Essex Counties.  Services include:  Residential, Day Habilitation, Community Supports, Pre-vcational and Employment Services, Clinical Services and Consumer Directed Personal Assistance Program. Funding sources include OPWDD, OMH, ACCES-VR and DOH.

8

Developmental Disabilities Regional Offices (DDROs)

Developmental Disabilities Regional Offices (DDROs) are the starting point to apply for services. With an eye to enhanced oversight and quality improvement, the Office for People With Developmental Disabilities (OPWDD) has established regions (“catchment areas”) that allow for better coordination of services with the State Office of Mental Health, State Department of Health and other agencies with whom we often partner in providing services.

In order to assist individuals and families to make informed choices about the supports and services best suited to their needs, DDROs work with local voluntary provider agencies to improve access to and coordinate services within a region (“catchment area”).

DDROs are responsible for the following activities:

  • eligibility;
  • intake;
  • waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution);
  • local management of Individual and Community Supports (ICS);
  • management of resources for crisis intervention;
  • advocacy;
  • shared management of OPWDD statewide applications;
  • service recruitment and development for the Family Care  program; and
  • programs, services and supports for aging individuals with developmental disabilities.

Eligibility for services is determined by the Developmental Disabilities Regional Offices (DDROs).  Please contact the Eligibility Coordinator of the Regional Office representing the county in which the individual/family lives.

Lastly, DDROs act in a supporting role to DD State Operations Offices with regard to eligibility for others areas of statewide services including but not limited to: level of care determinations; clinical delivery and waiver service delivery; Article 16 clinics; quality improvement processes; review of audit reports for trend analysis; emergency preparedness; safety, security and maintenance; and implementation of OPWDD initiatives.

View DDROs using our MSNavigator Mapping Tool.

9

Developmental Disability State Operations Offices (DDSOOs)

Developmental Disabilities State Operations Offices (DDSOOs) administer and oversee state operations for the Office for People With Developmental Disabilities (OPWDD), including the direct delivery of services and supports to people with developmental disabilities by state staff.  By focusing on local supports and services, statewide quality and consistency, and enhanced networking to promote best practices, DDSOOs are able to provide a consistent approach and culture, so that individuals and their families can expect continuous quality improvement in all services delivered directly by OPWDD across the state.

DDSOOs are responsible for the following activities:

  • development and monitoring of OPWDD systems improvement (e.g., continuous quality improvement processes, plans of corrective action (POCAs), informed consent and Behavior Management Committees);
  • offering specialized supports/services and service delivery in the areas of clinical and food services, waiver services and volunteers/senior companions;
  • acting in the capacity of advocate when responding to stakeholder questions and legislative inquiries;
  • oversight of support services (e.g., Medicaid compliance, HIPAA compliance and clinical records review);
  • oversight of the Statewide Technical Assistance Team, which provides pre-survey and focused technical assistance activities to campus-based ICFs and other state-operated community-based residential programs in which quality improvement issues have been identified; and ensures ongoing compliance with federal requirements and  that program certification is maintained;
  • management, on the local level, a variety of OPWDD statewide electronic billing and recordkeeping systems
  • oversight of the day-to-day administration of State-operated Family Care; and
  • oversight and coordination of fire safety initiatives, including development of evacuation plans in state-operated programs, and establishing and maintaining working relationships with local fire departments.

Eligibility for services is determined by the Developmental Disabilities Regional Offices (DDROs). Please contact the Eligibility Coordinator of the Regional Office representing the county in which the individual/family lives.

Lastly, DDSOOs act in a supporting role to DD Regional Offices in the areas of service development, local management of individual and community supports and crisis intervention.

View DDSOOs using our MSNavigator Mapping Tool. 

10

Express Yourself! Assessing Self-determination in your Life

This brochure contains a self-assessment designed to help you discover your level of self-determination and provides useful links to websites and resources with related information to help you stay determined and personally involved in your care.

Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council