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1

About Autism and Other Autism Resources

The Autistic Self Advocacy Network is a nonprofit organization run by and for autistic people. The About Autism page lists common characteristics of autism spectrum disorder. This website also has a catalog of publications serving the cross-disability community.

2

Accessing Home and Community-Based Services: A Guide for Self-Advocates

Accessing Home and Community-Based Services: A Guide for Self Advocates is a tool designed to help people with disabilities, families, and friends find and use available resources. This may include family and friends, community-based services, state funded waivers and programs, and other resources to help empower people with disabilities to live as independently as possible and make our own choices about what we need. It is a tool to inform about various resources and how to access them. It is also a reference about resources that, although you may not need or want them now, you can use in the future.

3

Arc Fact Sheets

The Arc has compiled a series of brief, two-page fact sheets for family members, advocates, professionals, media, researchers, policymakers and others that provide an overview of a specific topic related to intellectual disability. A wide variety of topics are covered, from the causes of intellectual disability to various types of syndromes to criminal justice/victimization issues.

4

Assertive Community Treatment (ACT)

Youth Assertive Community Treatment (ACT) is a program designed to address the significant needs of children ages 10 up to 21, who are at risk of entering, or returning home from high intensity services, such as inpatient settings or residential services, through the use of a multi-disciplinary team. Children with significant psychiatric needs, who are at risk of institutional level of care, require intensive interventions in order to adequately support the child and family’s complex needs, to avoid high end services or facilitate and support a successful transition back to community. Youth ACT serves as a critical component in the children’s continuum of care.

5

Assistive Technology (TRAID) Program

The Technology-Related Assistance for Individuals with Disabilities (TRAID) Program provides access to assistive technology to any New Yorker with a disability through Regional TRAID Centers. Regional TRAID Centers provide device loans and hands-on training to people with disabilities. To access equipment, locate the Regional TRAID Center overseeing your county from the list below. 

The Justice Center administers TRAID through grants from the US Department of Health and Human Services Administration for Community Living (ACL), the NYS Department of Health and ACCES-VR. A variety of devices are loaned out for use in different settings such as at home, school, or work.

6

Benefit Development Resource Guide

The Benefit Development Resource Guide (Resource Guide) is designed to assist employees who are responsible for developing the benefits and entitlements necessary to fund services for individuals served by OPWDD and voluntary provider agencies. It is not intended to be read from cover to cover, though those new to the topics discussed may wish to do so. The Resource Guide is primarily intended to be used as a reference during the process of assisting individuals in developing the benefits necessary to fund their care.

This guide provides detailed information about conducting eligibility investigations, protecting assets, and applying for Medicaid, the OPWDD Home and Community Based Services (HCBS) Waiver, Supplemental Security Income (SSI), Social Security benefits (SSDI), Medicare, and the Supplemental Nutrition Assistance Program (SNAP – formerly called Food Stamps). The manual consists of this introduction and the following sections:

  • Benefit Development
  • Liability for Services
  • Medicaid
  • Home and Community Based Services Waiver
  • Supplemental Security Income
  • Social Security Benefits 
  • Work Incentives 
  • Medicare
  • Supplemental Nutrition Assistance Program
  • Resource Management
  • Additional Resources

7

Children and Family Treatment and Support Services

The NYS Office of Mental Health (OMH) designed Children and Family Treatment Support (CFTSS) brochures, fact sheets, posters and FAQs in multiple languages. CFTSS provides mental health and/or substance abuse services in NYS Medicaid for children ages birth to 21. Services can be provided at home, in the community, or wherever children/youth and their families feel comfortable.

8

Children's HCBS & CFTSS Agency Site Map

Use this map to view Home and Community Based Services (HCBS) and Children and Family Treatment and Support Services (CFTSS) program information. 
 
Please note, there is a difference between designated county and physical site address. E.g. an agency may be located in Suffolk county (via map pin) but only be designated to serve Nassau county. Use the Step 1 filter to only filter to designated county/counties of interest.

9

Children's Home and Community Based Services (CHCBS)

Children's Home and Community Based Services are for children and youth (under age 21) who:

  1. Are enrolled or eligible to enroll in Medicaid - Some children/youth may be eligible for Medicaid if they are eligible for Children’s HCBS. If a child/youth does not have Medicaid and you think they may be eligible for HCBS, call C-YES at 1-833-333-2937
  2. Need extra care at home or in the community to avoid the need for long-term inpatient care
  3. Are in a higher level of care and would be able to stay at home with extra support

The NYS Office of Mental Health created multiple HSBC brochures and Q&A.

10

Close to Home Initiative

"Close to Home" is a juvenile justice reform initiative designed to keep youth close to their families and community. As part of a continued commitment to build on reforms of the state's juvenile justice system implemented in 2011-12, Governor Andrew M. Cuomo included the "Close to Home" initiative in his 2012/2013 Executive Budget Proposal.  The initiative allows New York City youth adjudicated as juvenile delinquents, whom Family Court has determined do not require a secure placement, to be placed in the custody of the New York City Administration for Children's Services (ACS) for residential services and aftercare. 

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Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council