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1

#TEXT4 Caregivers

With funding from the Developmental Disabilities Planning Council, Parent to Parent of NYS is pleased to introduce our latest initiative, Text4Caregivers. Text4Caregivers is a free text service that distributes timely and relevant self-care and stress-management support via text messaging. As a caregiver, you take care of others; this service exists to remind you to take care of you.

2

9 Tips to Improve Your Communication Skills

Communication is an essential part of work and home life. Understanding how to be a good communicator can be an important productivity tool, one that’s frequently neglected. Poor communication can often have disastrous results; lost time, injured feelings, frustration, ineffective meetings, unproductive teamwork, resulting in a general lack of career advancement and goal achievement. To become effective communicators we need to be aware of a few fundamental tips we can use in our work and life interactions. Regardless of the situation, the same rules apply.

3

About Autism and Other Autism Resources

The Autistic Self Advocacy Network is a nonprofit organization run by and for autistic people. The About Autism page lists common characteristics of autism spectrum disorder. This website also has a catalog of publications serving the cross-disability community.

4

Article 16 Clinic

The Shield Institute's Article 16 Clinic provides diagnostic, evaluation and clinical services for children and adults with autism spectrum disorder (ASD) and intellectual/developmental disabilities. Psychological, social work, speech, occupational and physical therapy, rehabilitative counseling and nutritional counseling are provided individually and/or in group settings. Specialty services include augmentative communication evaluation and treatment, eating and swallowing evaluation and treatment and psycho-sexual assessment and treatment. All services are provided by our licensed and experienced staff.

Learn more about the Shield Institute's Article 16 Clinic.

5

Autism Videos for Parents

The videos in this gallery are a  mix of English and Spanish and provide subtitles in both languages. The videos show parents and discuss the trauma of discovering their children were different and they discuss the struggles they have faced and how they have managed and overcome them.

6

Become a Family Peer Advocate (FPA)

Family Peer Advocates are valuable professionals within the child serving system. They are uniquely qualified to work with families based on their first-hand experience as the parent/caregiver of a young person with a social, emotional, behavioral, health, or developmental disability. This experience, combined with additional Parent Empowerment (PEP) training, allows them to provide peer support to parents of children with similar challenges.

7

Become a Youth Peer Advocate (YPA)

Are you a young person who is between the ages of 18 and 30 years old with first-hand experience with mental health, special education, or foster care services? Are you curious about ways you could help a younger person who is facing some of the same challenges you faced?

If so, consider becoming a Youth Peer Advocate (YPA). Learn more about how you can use your own experience with recovery to make a positive impact in another young person’s life.

8

Behavioral Health Treatment Services Locator Map

The SAMHSA Behavioral Health Treatment Locator Map provides location and contact information for the following issues:

  • Substance Abuse
  • Mental Health
  • Substance Abuse & Mental Health
  • Health Care Centers
  • Veteran's Affairs

This map allows users to filter by location, distance and type of program.

9

Benefit Development Resource Guide

The Benefit Development Resource Guide (Resource Guide) is designed to assist employees who are responsible for developing the benefits and entitlements necessary to fund services for individuals served by OPWDD and voluntary provider agencies. It is not intended to be read from cover to cover, though those new to the topics discussed may wish to do so. The Resource Guide is primarily intended to be used as a reference during the process of assisting individuals in developing the benefits necessary to fund their care.

This guide provides detailed information about conducting eligibility investigations, protecting assets, and applying for Medicaid, the OPWDD Home and Community Based Services (HCBS) Waiver, Supplemental Security Income (SSI), Social Security benefits (SSDI), Medicare, and the Supplemental Nutrition Assistance Program (SNAP – formerly called Food Stamps). The manual consists of this introduction and the following sections:

  • Benefit Development
  • Liability for Services
  • Medicaid
  • Home and Community Based Services Waiver
  • Supplemental Security Income
  • Social Security Benefits 
  • Work Incentives 
  • Medicare
  • Supplemental Nutrition Assistance Program
  • Resource Management
  • Additional Resources

10

Bravehearts - Motivating Others through Voices of Experiences (M.O.V.E.) NY

The mission of the Bravehearts is to empower young adults touched by the child welfare system to become active and authentic leaders in their own lives as they transition into adulthood.

Located in Westchester County, Bravehearts M.O.V.E. New York is the chapter-lead for the state and an authentic youth-led non-profit. They work to improve services and systems that support positive growth and development by uniting the voices of individuals who have lived experience in various systems including mental health, juvenile justice, education and child welfare.

A Braveheart is any young adult, aged 14-26 who has overcome adversity, persevered through difficult times and come out as a stronger and wiser version of themselves.

Terms / Acronyms for:

mental

Administration on Intellectual and Developmental Disabilities(AIDD)

Child Care Mental Health Consultation Programs

Chronic/Severe Mental Illness

Community Mental Health Agencies

Condition Specific Mental Health Information/Education

County Departments of Mental Health

Day Treatment for Adults With Developmental Disabilities

Developmental Disabilities

Developmental Disabilities Activity Centers

Developmental Disabilities Behavior Management Programs

Developmental Disabilities Day Habilitation Programs

Developmental Disabilities Regional Offices(DDRO)

Developmental Disabilities Social/Recreational Programs

Developmental Disability(DD)

Developmental Disability State Operations Offices(DDSOO)

Diagnostic and Statistical Manual for Mental Disorders(DSM)

Early Intervention for Mental Illness

Environmental Control Systems

Environmental Hazards Shelters

Experimental Colleges

Families/Friends of Mentally Ill

Federal Supplemental Educational Opportunity Grant(FSEOG)

Forensic Mental Health Evaluation

Fundamental Schools

Home Based Mental Health Services(HBMH)

Home/Community Based Developmental Disabilities Programs(HCBDDP)

In Home Developmental Disabilities Habilitation Programs

Infant and Early Childhood Mental Health

Inpatient Mental Health Facilities

Intellectual and Developmental Disability(I/DD)

Intermediate Care Facilities for Individuals With Developmental Disabilities(ICF/DD)

Jail Diversion Programs for Mentally Ill Offenders

Mental Health and Substance Abuse Services

Mental Health Associations

Mental Health Care Facilities

Mental Health Courts

Mental Health Drop In Centers

Mental Health Evaluation

Mental Health Evaluation and Treatment

Mental Health Expense Assistance

Mental Health Halfway Houses

Mental Health Hotlines

Mental Health Information/Education

Mental Health Information/Education

Mental Health Intervention Programs

Mental Health Issues

Mental Health Occupational Therapy(MHOT)

Mental Health Practitioner Associations

Mental Health Related Prevention Programs

Mental Health Related Support Groups

Mental Health Screening

Mental Health Support Services

Mental Health Warrants

Mental Illness/Emotional Disabilities

NYC Department of Health and Mental Hygiene(NYC DOHMH)

Outpatient Mental Health Facilities

Post Disaster Mental Health Expense Assistance

Post Disaster Mental Health Services

Programs for Offenders With Mental Disabilities(MDO Programs)

Programs for Sex Offenders With Mental Disabilities(MDSO Programs)

Secured Mental Health Facilities

Substance Abuse and Mental Health Services Administration(SAMHSA)

Supplemental Needs Trusts(SNT)

Supplemental Nutrition Assistance Program(SNAP)

Supplemental Security Income(SSI)

Transitional Mental Health Services

University Centers for Excellence in Developmental Disabilities(UCEDD)

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Resource Categories

Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council