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Long-Term Care (LTC)

Long-term care (LTC) includes a variety of services which help meet both the medical and non-medical needs of people with a chronic illness or disability who cannot care for themselves for long periods of time.

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Long-Term Care (LTC)

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1

Culturally Competent Care for LGBTQ Older Adults Video

This video, jointly produced by the Center for Consumer Engagement in Health Innovaton and SAGE, the nation’s largest and oldest organization serving lesbian, gay, bisexual and transgender elders, looks at the unique experiences and needs of LGBTQ older adults to get at the vital importance of providers making efforts to become familiar with the diverse populations they serve, and be ready to meet consumers where they are in providing for their health care needs.

2

Developmental Disabilities Regional Offices (DDROs)

Developmental Disabilities Regional Offices (DDROs) are the starting point to apply for services. With an eye to enhanced oversight and quality improvement, the Office for People With Developmental Disabilities (OPWDD) has established regions (“catchment areas”) that allow for better coordination of services with the State Office of Mental Health, State Department of Health and other agencies with whom we often partner in providing services.

In order to assist individuals and families to make informed choices about the supports and services best suited to their needs, DDROs work with local voluntary provider agencies to improve access to and coordinate services within a region (“catchment area”).

DDROs are responsible for the following activities:

  • eligibility;
  • intake;
  • waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution);
  • local management of Individual and Community Supports (ICS);
  • management of resources for crisis intervention;
  • advocacy;
  • shared management of OPWDD statewide applications;
  • service recruitment and development for the Family Care  program; and
  • programs, services and supports for aging individuals with developmental disabilities.

Eligibility for services is determined by the Developmental Disabilities Regional Offices (DDROs).  Please contact the Eligibility Coordinator of the Regional Office representing the county in which the individual/family lives.

Lastly, DDROs act in a supporting role to DD State Operations Offices with regard to eligibility for others areas of statewide services including but not limited to: level of care determinations; clinical delivery and waiver service delivery; Article 16 clinics; quality improvement processes; review of audit reports for trend analysis; emergency preparedness; safety, security and maintenance; and implementation of OPWDD initiatives.

View DDROs using our MSNavigator Mapping Tool. 

3

Developmental Disability State Operations Offices (DDSOOs)

Developmental Disabilities State Operations Offices (DDSOOs) administer and oversee state operations for the Office for People With Developmental Disabilities (OPWDD), including the direct delivery of services and supports to people with developmental disabilities by state staff.  By focusing on local supports and services, statewide quality and consistency, and enhanced networking to promote best practices, DDSOOs are able to provide a consistent approach and culture, so that individuals and their families can expect continuous quality improvement in all services delivered directly by OPWDD across the state.

DDSOOs are responsible for the following activities:

  • development and monitoring of OPWDD systems improvement (e.g., continuous quality improvement processes, plans of corrective action (POCAs), informed consent and Behavior Management Committees);
  • offering specialized supports/services and service delivery in the areas of clinical and food services, waiver services and volunteers/senior companions;
  • acting in the capacity of advocate when responding to stakeholder questions and legislative inquiries;
  • oversight of support services (e.g., Medicaid compliance, HIPAA compliance and clinical records review);
  • oversight of the Statewide Technical Assistance Team, which provides pre-survey and focused technical assistance activities to campus-based ICFs and other state-operated community-based residential programs in which quality improvement issues have been identified; and ensures ongoing compliance with federal requirements and  that program certification is maintained;
  • management, on the local level, a variety of OPWDD statewide electronic billing and recordkeeping systems
  • oversight of the day-to-day administration of State-operated Family Care; and
  • oversight and coordination of fire safety initiatives, including development of evacuation plans in state-operated programs, and establishing and maintaining working relationships with local fire departments.

Eligibility for services is determined by the Developmental Disabilities Regional Offices (DDROs). Please contact the Eligibility Coordinator of the Regional Office representing the county in which the individual/family lives.

Lastly, DDSOOs act in a supporting role to DD Regional Offices in the areas of service development, local management of individual and community supports and crisis intervention.

View DDSOOs using our MSNavigator Mapping Tool. 

4

Disability Provider Directory

The NYS Office For People With Developmental Disabilities and its associated voluntary agencies offer many services to individuals and their families. This interactive directory lists services by service type and location.

5

Disability Resource Clearinghouse and Navigators

The Justice Center’s Disability Resource Clearinghouse provides information about disability-related programs, services, laws and regulations. This Clearinghouse links to resources from local, state, federal and national agencies, as well as nonprofit organizations. 

NEED FURTHER ASSISTANCE?

If you cannot find the information you need, call a Disability Navigator toll-free at 1-800-624-4143.  Relay users, please dial 7-1-1 or email infoassistance@justicecenter.ny.gov.  

6

Disability.Gov

Disability.gov is the federal government website for comprehensive information about disability-related programs, services, policies, laws and regulations. The site links to thousands of resources from many different federal government agencies, as well as state and local governments and nonprofit organizations across the country.

Every day, new resources are added to Disability.gov’s 10 main subject areas: Benefits, Civil Rights, Community Life, Education, Emergency Preparedness, Employment, Health, Housing, Technology and Transportation. You’ll find information on topics such as Social Security disability benefits, job accommodations for employees with disabilities, accessible housing, and organizations in your state that can help you find a job or live independently.

Please keep in mind that Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website. For example, a resource about Social Security disability benefits may direct you to  Social Security Administration (www.ssa.gov). Disability.gov is not responsible for the maintenance, accuracy or accessibility of information on these websites.

7

Everything You Need to Know About OPWDD Eligibility

This series of videos gives an introduction to the OPWDD eligibility process, and process for obtaining services. 

  • What is OPWDD, where to start and what is eligibility? Basic introduction to accessing services for people with intellectual and developmental disabilities in New York. Introduces Office for People with Developmental Disabilities (OPWDD) and the concept of eligibility for OPWDD funded services.
  • What is needed to apply for OPWDD eligibility? Discusses evaluations required for applying for eligibility and steps required for submitting paperwork to the Office for People with Developmental Disabilities (OPWDD).

  • Eligibility attained, what now? Once a person has established eligibility, what are the next steps? How do you access services? What services are there?

8

Family Care Navigator

The Family Care Navigator provides information on:

  • Government Health & Disability Programs
  • Services for Care Recipients Living at Home
  • Services & Policies for Family Caregivers
  • Resources on Living Arrangements for Care Recipients
  • General Information & Assistance
  • Legal Help & Advocacy
  • Disease-Specific Organiations

9

Family Support Regional Directories of Mental Health Services

The Families Together of NYS (FTNYS) Parent Advisors have created directories of the services available in each region of New York State. These directories provide comprehensive information on mental health services for children and families for each region of New York State.

View our Families Together in NYS Parent Advisor map to contact a parent advisor in your region. Regional Parent Advisors build relationships with all of the family support services withing their region. They serve as liaisons, facilitating communication between the NYS Office of Mental Health and families in the community.

10

Home and Community Based Services Clearinghouse

HCBS.org is the premier clearinghouse promoting the development and expansion of home and community-based services by gathering resources and tools for research, policy making and program development into a one-stop online library.

Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council