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Neurological Disorder

Any of a variety of conditions that are the result of an injury to or impairment of the central nervous system.

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Neurological Disorder

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1

Arc Fact Sheets

The Arc has compiled a series of brief, two-page fact sheets for family members, advocates, professionals, media, researchers, policymakers and others that provide an overview of a specific topic related to intellectual disability. A wide variety of topics are covered, from the causes of intellectual disability to various types of syndromes to criminal justice/victimization issues.

2

Centers for Disease Control and Prevention (CDC)

The Centers for Disease Control and Prevention (CDC) website provides a plethora of credible information on all aspects of protecting and improving quality health and wellness initiatives.

3

Child Mind Institute

The Child Mind Institute contains a wide variety of useful information resources for families and educators. The site explores concerns and challenges faced by parents, family members and educators. Learn how to effectively respond to emotional, behavioral and learning challenges. This website also contains many personal story videos.

Th Child Mind Institute is available online or in person (in New York City), offering evaluations, treatment and neuropsychological testing for children, teens and young adults.

4

Equipment Loan Fund for the Disabled

This brochure explains the various components of the NYS Office of Children and Family Services (OCFS) Equipment Loan Fund where disabled residents of New York State are eligible. Money is loaned either directly to the disabled person or to another person responsible for the individual. 

5

Growing Up Healthy Hotline

The Department of Health operates the Growing Up Healthy Hotline, which provides information about health care, nutrition and other health and human services. The hotline provides information and referral 24 hours/day, seven days a week in English and Spanish and other languages.

6

Interagency Case Resolution Unit

The Interagency Case Resolution Unit works to assist caregivers and individuals in receiving the most appropriate community-based or residential services; minimize delays in arranging services or placements, and resolves barriers that impede timely service delivery or placement. 

The Interagency Case Resolution Unit becomes involved ONLY after all program options and dispute resolution procedures have been exhausted at the local and regional levels, or if a caregiver feels their child's needs are not being met by existing systems. 

How to Make a Referral

The agent making a referral on behalf of a child must provide the Council with the following:

  • a completed Intake Form and a signed Release of Information Form;
  • a description of the barriers encountered in attempting to provide appropriate services or placement;
  • a record of the efforts that have been made by the referral source or others to secure services and/or placements for the child; and
  • background information on the child's special needs.

A referral containing all of the information mentioned above may be submitted to:

Sheila Jackson, Coordinator, Interagency Case Resolution Unit 

Kathleen Rivers, Assistant Coordinator, Interagency Case Resolution Unit

Interagency Case Resolution Unit
NYS Council on Children and Families
52 Washington Street
West Building, Suite 99
Rensselaer, NY 12144

Telephone: 518-473-3652
Fax: 518-473-2570
e-mail: sheila.jackson@ccf.ny.gov; kathleen.rivers@ccf.ny.gov

7

NYS Medicaid Speech Generating Device & Related Accessories Guidelines

Augmentative and alternative communication (AAC) includes all forms of communication (other than oral speech) that are used to express thoughts, needs, wants and ideas. People with severe speech or language problems rely on AAC to supplement existing speech or replace speech that is not functional. Speech generating devices and related accessories are covered when NYS Medicaid's minimum coverage criteria have been met. This document provides information on the coverage guidelines for speech generating devices and related accessories.

8

Resource Directory for Children and Young Adults with Special Health Care Needs

This resource directory is for the families of children and young adults who have a serious illness or long-lasting condition for which they need extra health care and support services. Children and young adults with special health care needs might have a serious or long-lasting:

  • Physical condition
  • Intellectual or developmental disability or
  • Behavioral or emotional condition.

9

Statewide School Health Services Center

The New York Statewide School Health Services Center is a contracted Center of the NYS Education Department that provides technical assistance, resources and professional development focused on student health and wellness initiatives.

This website provides legal information related to school health and nutrition, as well specific information on medication administration, field trips, confidentiality - really all aspects of school-related health management.

Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council