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Seizure Disorder

A recurrent paroxysmal disorder of cerebral function that is characterized by sudden, brief interruptions in or complete loss of consciousness, motor activity and/or sensory phenomena. The seizures are caused by disruptions in the electrical and physiochemical activity of the brain.

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Seizure Disorder

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1

Centers for Disease Control and Prevention (CDC)

The Centers for Disease Control and Prevention (CDC) website provides a plethora of credible information on all aspects of protecting and improving quality health and wellness initiatives.

2

Everything You Need to Know About OPWDD Eligibility

This series of videos gives an introduction to the OPWDD eligibility process, and process for obtaining services. 

  • What is OPWDD, where to start and what is eligibility? Basic introduction to accessing services for people with intellectual and developmental disabilities in New York. Introduces Office for People with Developmental Disabilities (OPWDD) and the concept of eligibility for OPWDD funded services.
  • What is needed to apply for OPWDD eligibility? Discusses evaluations required for applying for eligibility and steps required for submitting paperwork to the Office for People with Developmental Disabilities (OPWDD).

  • Eligibility attained, what now? Once a person has established eligibility, what are the next steps? How do you access services? What services are there?

3

Growing Up Healthy Hotline

The Department of Health operates the Growing Up Healthy Hotline, which provides information about health care, nutrition and other health and human services. The hotline provides information and referral 24 hours/day, seven days a week in English and Spanish and other languages.

4

Interagency Case Resolution Unit

The Interagency Case Resolution Unit works to assist caregivers and individuals in receiving the most appropriate community-based or residential services; minimize delays in arranging services or placements, and resolves barriers that impede timely service delivery or placement. 

The Interagency Case Resolution Unit becomes involved ONLY after all program options and dispute resolution procedures have been exhausted at the local and regional levels, or if a caregiver feels their child's needs are not being met by existing systems. 

How to Make a Referral

The agent making a referral on behalf of a child must provide the Council with the following:

  • a completed Intake Form and a signed Release of Information Form;
  • a description of the barriers encountered in attempting to provide appropriate services or placement;
  • a record of the efforts that have been made by the referral source or others to secure services and/or placements for the child; and
  • background information on the child's special needs.

A referral containing all of the information mentioned above may be submitted to:

Sheila Jackson, Coordinator, Interagency Case Resolution Unit 

Kathleen Rivers, Assistant Coordinator, Interagency Case Resolution Unit

Interagency Case Resolution Unit
NYS Council on Children and Families
52 Washington Street
West Building, Suite 99
Rensselaer, NY 12144

Telephone: 518-473-3652
Fax: 518-473-2570
e-mail: sheila.jackson@ccf.ny.gov; kathleen.rivers@ccf.ny.gov

5

Resource Directory for Children and Young Adults with Special Health Care Needs

This resource directory is for the families of children and young adults who have a serious illness or long-lasting condition for which they need extra health care and support services. Children and young adults with special health care needs might have a serious or long-lasting:

  • Physical condition
  • Intellectual or developmental disability or
  • Behavioral or emotional condition.

6

Statewide School Health Services Center

The New York Statewide School Health Services Center is a contracted Center of the NYS Education Department that provides technical assistance, resources and professional development focused on student health and wellness initiatives.

This website provides legal information related to school health and nutrition, as well specific information on medication administration, field trips, confidentiality - really all aspects of school-related health management.

7

Trapped

Kevin, 24, lives with his parents. His short term memory, anxiety and anger are a result of diabetes-induced seizures as an infant. He now copes with his setbacks by eating foods that do not trigger outbursts.

Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council