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Self-Directed Care

Self-directed care services, often referred to as consumer-directed services, is a philosophy and practice that assumes that caregivers have the right and ability to assess their own needs, determine how and by whom those needs are met, and evaluate the quality of the services they receive.

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Self-Directed Care

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1

2-1-1/3-1-1

2-1-1 (and 3-1-1 in New York City) are easy-to-remember numbers that helps people cut through what can be a confusing and overwhelming maze of information and resources.

2-1-1 (and 3-1-1 in New York City) helps people assess their needs and links them directly to the resources that will help. Whether you are looking for essential services, seeking volunteer opportunities or starting a small business, 2-1-1 (and 3-1-1 in New York City) is there to help.

2

411 on Disability Disclosure: A Workbook for Youth with Disabilities

This Workbook is designed for youth and adults working with them to learn about disability disclosure. This workbook helps young people make informed decisions about whether or not to disclose their disability and understand how that decision may impact their education, employment, and social lives. Based on the premise that disclosure is a very personal decision, the Workbook helps young people think about and practice disclosing their disability. The workbook does not tell a young person what to do. Rather, it helps them make informed decisions about disclosing their disability, decisions that will affect their educational, employment, and social lives.

 

3

ABLE Accounts: 10 Things You Should Know

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families. The beneficiary of the account is the account owner, and income earned by the accounts will not be taxed. Contributions to the account made by any person (the account beneficiary, family and friends) will be made using post-taxed dollars and will not be tax deductible, although some states may allow for state income tax deductions for contribution made to an ABLE account.

4

Accessibility Animations

This website contains a number of animated videos displaying and describing the American's with Disabilities (ADA) guidelines and standards. Captioned videos are also provided.

5

Accessing Home and Community-Based Services: A Guide for Self-Advocates

Accessing Home and Community-Based Services: A Guide for Self Advocates is a tool designed to help people with disabilities, families, and friends find and use available resources. This may include family and friends, community-based services, state funded waivers and programs, and other resources to help empower people with disabilities to live as independently as possible and make our own choices about what we need. It is a tool to inform about various resources and how to access them. It is also a reference about resources that, although you may not need or want them now, you can use in the future.

6

Assistive Technology (TRAID) Program

The Assistive Technology Exchange in New England & New York was established to help facilitate equipment exchanges between individuals. Items are posted on its getATstuff website. The Justice Center supports 12 Regional TRAID Centers (RTCs), where staff provides information, training, device demonstration, device reuse, device exchange, and device loans. TRAID staff also provides technical assistance and advocacy on how to obtain and use assistive technology services and devices. 

The TRAID Program, in collaboration with the NYS Department of Health Early Intervention Program, provides partial funding to the RTCs for device loan libraries for infants and toddlers with disabilities, ages birth to three, and their families.

7

Become a Youth Peer Advocate (YPA)

Are you a young person who is between the ages of 18 and 30 years old with first-hand experience with mental health, special education, or foster care services? Are you curious about ways you could help a younger person who is facing some of the same challenges you faced?

If so, consider becoming a Youth Peer Advocate (YPA). Learn more about how you can use your own experience with recovery to make a positive impact in another young person’s life.

8

Benefit Development Resource Guide

The Benefit Development Resource Guide (Resource Guide) is designed to assist employees who are responsible for developing the benefits and entitlements necessary to fund services for individuals served by OPWDD and voluntary provider agencies. It is not intended to be read from cover to cover, though those new to the topics discussed may wish to do so. The Resource Guide is primarily intended to be used as a reference during the process of assisting individuals in developing the benefits necessary to fund their care.

This guide provides detailed information about conducting eligibility investigations, protecting assets, and applying for Medicaid, the OPWDD Home and Community Based Services (HCBS) Waiver, Supplemental Security Income (SSI), Social Security benefits (SSDI), Medicare, and the Supplemental Nutrition Assistance Program (SNAP – formerly called Food Stamps). The manual consists of this introduction and the following sections:

  • Benefit Development
  • Liability for Services
  • Medicaid
  • Home and Community Based Services Waiver
  • Supplemental Security Income
  • Social Security Benefits 
  • Work Incentives 
  • Medicare
  • Supplemental Nutrition Assistance Program
  • Resource Management
  • Additional Resources

9

Bravehearts - Motivating Others through Voices of Experiences (M.O.V.E.) NY

The mission of the Bravehearts is to empower young adults touched by the child welfare system to become active and authentic leaders in their own lives as they transition into adulthood.

Located in Westchester County, Bravehearts M.O.V.E. New York is the chapter-lead for the state and an authentic youth-led non-profit. They work to improve services and systems that support positive growth and development by uniting the voices of individuals who have lived experience in various systems including mental health, juvenile justice, education and child welfare.

A Braveheart is any young adult, aged 14-26 who has overcome adversity, persevered through difficult times and come out as a stronger and wiser version of themselves.

10

Casey Life Sills (CLS) Assessment Tool

The Casey Life Skills (CLS) tool is a tool for youth to build their own personal checklist of skills and strengths. It shows them what they know already and what is possible for them to learn in the future. A case worker or mentor needs to help them create a free account.

Developed by the Council on Children and Families and Funded by the Developmental Disabilities Planning Council